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Saving Eliza
I’m honored to be speaking at the NORD Breakthrough Summit on Rare Diseases and Orphan Products in October. Social media, as I continue to learn more every day, is an always changing, rapidly...
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2015 Portraits of Courage Honorees: Glenn and Cara O’Neill
In a race against time, Glenn and Cara O’Neill have quarantined their family for nearly one year to try and save their daughter, Eliza. Eliza, 5, has Sanfilippo Syndrome, a rare degenerative disease...
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